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People who care about Texas families make the difference. Here's how you can help now.
Support the Lone Star Genome Act
Be ready to contact your legislators when a bill is filed for the 2027 session.
Read the proposalShare your skills
Parents, clinicians, researchers, and people with nonprofit, legal, or design experience can all help. Tell us how you'd like to pitch in.
See volunteer rolesComing soon
See how giving will work
Give
Donations are not open yet. We're completing the last steps so that every gift is handled properly, and we'll open giving as soon as that is done. Sign up and check "Giving when donations open," and we'll tell you first.
Volunteer
Lend us your skills
We are a young foundation, and volunteers do real work here. Tell us what you are good at and we will find the right place for you.
Parents and caregivers
Tell us what your family needed, and when. Your experience shapes every program we build.
Clinicians and genetic counselors
Help us get the medical details right and point families toward the right care.
Researchers
Advise on our grant priorities and help us see where the real gaps are.
Nonprofit, legal, and grant writing
Governance, policy, and the paperwork that keeps a foundation honest and funded.
Design, technology, and translation
Our website, our materials, and keeping everything we publish available in Spanish.
Spread the word
Share what we publish, talk to your community, and help Texas families find us.
You do not need a medical or nonprofit background to help. Tell us how much time you have and what you enjoy doing, and we will be honest about where it would make the most difference.
Two seats on our board are open
We are looking for a Vice President of Communications and a Treasurer. This is a working board, so these are real jobs rather than honorary titles. If you have experience in either and you care about Texas families facing rare genetic disease, we would like to hear from you.
Board positions are volunteer. Any compensation is set out in our bylaws and governing documents.
Where your skills fit
Parents and caregivers
Tell us what helped your family and what was missing, so the help we build fits real families.
Clinicians and genetic counselors
Tell us where families get stuck on the road to a diagnosis, and which specialists and centers families should know about.
Researchers
Tell us about your work in children's genetics, even though our grants are not open yet.
Nonprofit experience
Share what you know about running a nonprofit well, from budgets to volunteers to grants.
Legal experience
Help us understand the laws that affect families, such as health privacy, and how they apply to the Lone Star Genome Act proposal.
Design experience
Help us keep our website and materials clear and easy to use for every family, in English and Spanish.
People who care about Texas families make the difference.